Further adventures....

It would be fair to say this hasn't been a great week for me. After starting a course of steroids (Dexamethasone)on Wednesday, I eagerly awaited for my symtoms to reduce, and for my mobility to improve, and to start using my hand. Only it didn't quite go according to plan... There has definitely been no improvement to speak of, in fact if anything there's been a decline. I am now using my stick for walking in and out of doors ( without it, walking is far to risky- my leg tend to give way. a lot,), My hand is completely non- functioning; back to getting my mum to put my hair up. I am back to using a shower stool (thank god we kept that ten years ago!) as I don't trust my legs to hold out when I'm washing. On top of all this (if it's not enough!), I have also been battling extreme drowsiness/ exhaustion, having to spend most of my time resting and having naps during the day. None of this is good, so today I phoned the acute oncology line at the N&N hospital (it's the only line available at weekends) to get some advice. The nurse who spoke to me took down full details of my concerns, and advised me to call Sarah, my key worker nurse tomorrow morning. She may decide to have me in for assessment (whatever that involves...?! ), to determine what is going on. It's quite worrying as usually Steroids start taking effect within 8-24 hours, so the fact mine have done nothing in 5 days is cause for concern... Hoever, as always, there's no point worrying unless I have to, so I wait and see what gets decided over the next few days. Meanwhile, if I can find a smidgeon of energy this week, I'll try to add something to my new but pathetically bare creative writing blog and attempt to exercise my leg and hand if possible. Will as ever keep you all updated....